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A sunny afternoon, a little outing.
Summer is mostly gone from South Wales, but not completely. We have been fortunate to still have warmth during the days. Nevertheless the summer seating in my in-laws’ garden has been tucked away for...
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First of 30.
Last night was all hustle, we had to take an unexpected trip to 15′s respite because I forgot to send one of her medications and then a mix up with our meal. Don’t ask, let’s just say we won’t be...
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We’re still on holiday?
The Christmas holidays linger at Tŷ Us. In much the same way as I was glad to take down the decorations some days ago I will be immensely pleased to see the return to normality on Wednesday. 15′s...
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Easing a headache.
Today is shaping up as a day for quietness. My daughter wants to enjoy her activities. Rosie wants to cuddle and sleep. I am happy to accommodate them, gripped as I am by a vice-like headache. The...
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Nourishing.
At school today she likely had a seizure. They rang home to tell me. I am so glad I made this lasagna this morning. I cooked early to avoid the time pressure of having to get it all together while she...
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Watching and caring.
Sitting tight, holding hands. Today is about watching and caring and praying that yesterday’s seizure is not repeated. Our plans for today changed. 15 stayed home from school, I stayed home from work....
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Trying to get her seizures back under control.
I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present...
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A little square of happiness.
Easter is over, the work routine has begun again. Chocolate has been eaten, walks have been taken and time together savoured. In the middle of visits home from grown children and visits to the in-laws...
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Do you?
Do you admit to quiet pleasure at the ending of the day? To the thrill of a bright smile and little wave? Hearing her say, “goodbye” Knowing she means goodbye to your work, not to you. Do you smile...
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There and back again.
For months respite has been sketchy, demands on resources by children in crisis, small bouts of illness for 15, have lead to a long gap since the last visit. This time there were no hindrances. Bags...
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