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There and back again.
For months respite has been sketchy, demands on resources by children in crisis, small bouts of illness for 15, have lead to a long gap since the last visit. This time there were no hindrances. Bags...
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Do you?
Do you admit to quiet pleasure at the ending of the day? To the thrill of a bright smile and little wave? Hearing her say, “goodbye” Knowing she means goodbye to your work, not to you. Do you smile...
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A little square of happiness.
Easter is over, the work routine has begun again. Chocolate has been eaten, walks have been taken and time together savoured. In the middle of visits home from grown children and visits to the in-laws...
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Trying to get her seizures back under control.
I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present...
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Watching and caring.
Sitting tight, holding hands. Today is about watching and caring and praying that yesterday’s seizure is not repeated. Our plans for today changed. 15 stayed home from school, I stayed home from work....
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Nourishing.
At school today she likely had a seizure. They rang home to tell me. I am so glad I made this lasagna this morning. I cooked early to avoid the time pressure of having to get it all together while she...
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Easing a headache.
Today is shaping up as a day for quietness. My daughter wants to enjoy her activities. Rosie wants to cuddle and sleep. I am happy to accommodate them, gripped as I am by a vice-like headache. The...
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We’re still on holiday?
The Christmas holidays linger at Tŷ Us. In much the same way as I was glad to take down the decorations some days ago I will be immensely pleased to see the return to normality on Wednesday. 15′s...
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First of 30.
Last night was all hustle, we had to take an unexpected trip to 15′s respite because I forgot to send one of her medications and then a mix up with our meal. Don’t ask, let’s just say we won’t be...
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A sunny afternoon, a little outing.
Summer is mostly gone from South Wales, but not completely. We have been fortunate to still have warmth during the days. Nevertheless the summer seating in my in-laws’ garden has been tucked away for...
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The nest is emptying.
The last few weeks have been a challenge for me. My two middle children have been home all summer but now that has ended it is time for them to move forward. Last Friday the older of my girls began...
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The Friday feeling.
We have arrived at the penultimate Friday of the school summer holidays here in Wales. One more full week plus the Monday at home and then my youngest will be going back to school. I wonder what this...
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Far away.
One irrefutable truth of school summer holidays, especially when you are caring for a child with special needs and behavioural problems is that there are limits to where you can go and what you can...
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Some days the reality of your child’s Special Needs just hits you.
I was sailing along quite happily counting down the days to the end of the school year, thinking about what we could do during the Summer holiday. The first tiny jolt came a few days ago. While...
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It’s Summer!
We are having Summer. I’m not sure the country knows how to deal with it but it has arrived. I absolutely adore it. I love the heat and the sunshine, the colourful blooms and the enticing hope of some...
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Ready for respite.
It is the most glorious Friday morning, the murk of yesterday has passed and already the promise of heat is building. My husband has gone off on one of his regular work trips to Aberystwyth. I have to...
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Never laugh off the sleep note.
I will admit it, yesterday I was more than a little blasé about the teacher’s note from school telling me my youngest had slept in the morning. I laughed it off as being nothing compared to how I...
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Tears and singing.
Last night, from nowhere, tears appeared. They overran her eyes and streamed in rivulets down her cheeks. I sat beside her, upset to see her so distressed. Without thinking I, in mother mode said,...
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Birthdays and parenting.
June has begun most gloriously here in South Wales. We have been bathed in warmth and sunshine, it could not be more different to the dreechtness of May. Yesterday my husband celebrated his birthday....
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Strengthening the connections.
As I wrote on Monday this is the Spring half-term holiday week in our area. Both my girls are home from school each day and my husband has taken a couple of days off to look after our youngest while I...
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